About Us

Formed in February, 2019, the International Pediatric Stroke Organization (IPSO) is a group of health professionals, scientists and patient advocates who care about stroke and other cerebrovascular diseases in childhood. We formed out of a research group called the International Pediatric Stroke Study (IPSS).

IPSO brings together experts from around the world who are interested in childhood stroke and stroke recovery. IPSO will share information to medical providers to educate on childhood stroke and stroke recovery. Lastly, IPSO will engage with affected families and advocate for children at risk for stroke or afflicted by stroke.

As part of IPSO’s first community initiative, IPSO has launched the IPSO Community Website. The IPSO Community Website will house IPSO’s very first online news periodical, IPSO Kid Stroke Connections, and also include resources for patients and their families or caregivers. To read articles from IPSO Kid Stroke Connections, you may visit our home-page or search for articles based on categories through the Articles tab. Visit our Resource page for useful handouts or websites for more information on pediatric stroke and cerebrovascular disease.

Want to be more involved in IPSO? Check out the Get Involved webpage to learn more.

About our Periodical

IPSO launched IPSO Kid Stroke Connections, an online news periodical, that shares news about pediatric cerebrovascular disease to the community of affected patients and their families, other caregivers, and friends and advocates. In our periodical, you will find a wide variety of information ranging from patient and family resources to research opportunities. Starting in May 2023, IPSO Kid Stroke Connections will be published on a quarterly basis on the IPSO Community website.

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Click to sign up for our online news periodical and get the latest information of pediatric stroke research news, research studies, community stories and more.

IPSO Board of Directors

Heather Fullerton, MD, MAS

President

Neurologist
University of California, San Francisco Benioff Children’s Hospital
San Francisco, United States

(2019-2025)

Maja Steinlin, MD

Vice Chair

Neurologist
University Children’s Hospital Bern
Bern, Switzerland

(2019-2025)

Lori Jordan, MD, PhD

Treasurer

Neurologist
Vanderbilt Children’s Hospital
Nashville, United States

(2019-2025)

Mary Kay Ballasiotes

Board Member

Executive Director of International Alliance for Pediatric Stroke/Patient Advocate
Charlotte, United States

(2021-2027)

Francesca Fedeli

Board Member

President of FightTheStroke Foundation and Patient Advocate
Milan, Italy

(2022-2028)

Adam Kirton, MD

Board Member

Neurologist
Alberta Children’s Hospital
Alberta, Canada

(2019-2025)

Manoëlle Kossorotoff, MD

Board Member

Neurologist
Necker-Enfants Malades Hospital
Paris, France

(2020-2026)

Mark Ladendorf

Board Member

Director, Relationship Management
TIAA Kaspick
Boston, United States

(2022-2028)

Mark Mackay, MD, PhD

Board Member

Neurologist
The Royal Children’s Hospital Melbourne
Melbourne, Australia

(2019-2025)

Adam Rennie, MB, BS, BMSc, FRCR

Board Member

Consultant Interventional Neuroradiologist
Great Ormond Street Hospital
London, United Kingdom

(2020-2026)

Jim Rhodes

Board Member

Vice President, HRIS at Emerson & Parent/Patient Advocate
St. Louis, United States

(2021-2027)

Brad Schlaggar, MD, PhD

Board Member

Neurologist
Kennedy Krieger Institute
Baltimore, United States

(2019-2025)

Edward Smith, MD

Board Member

Neurosurgeon
Boston Children’s Hospital
Boston, United States

(2019-2025)